Jim did not receive the invitation for the annual potluck at his church. He ran into Susan, who was a coordinator at the church and also Jane’s friend. Susan explained, “Jane had mentioned about her tests for dementia. I’m sure she needs more rest and care, so this year we thought it was best not to send you an invitation. But if she feels up to it, then I can certainly mail it.” Jim was aware that his wife’s dementia might lead to some lifestyle changes but he was not prepared for them to be so immediate.
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Imagine yourself at the World Music Day celebration in your downtown. It’s a sunny afternoon. Each corner occupied by a musical group that is singing, drumming, or dancing to the tunes from distant lands. Some familiar rhythms while some are novel. Some voices are so bright that one forgets to record and just keeps dancing. You and your friend manage to grab an iced lemon tea as your lazy steps want to keep walking around.
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Thankfully, Joseph came to know about the Human Rights Act to family life (Article 8) in the UK. Joseph’s wife, Amelia, had received a diagnosis of dementia five years earlier. And, for five years, Joseph and Amelia were able to manage their life at home. But now Amelia needed more support and Joseph, 70, was experiencing health problems. The health services had suggested placing Amelia in a nursing facility that was about an hour’s drive from home. But, given his health situation, Joseph would not be able to visit Amelia. Joseph consulted his social worker, lawyer, and other dementia caregivers to understand their options. Based on the Human Rights Act to family life, he was able to have Amelia placed in a nursing facility closer to home where he could visit often.
Continue reading Empowerment